Collection: Pulmonary Fibrosis NI

Pulmonary Fibrosis is a chronic, life limiting, progressive lung disease that affects over 2000 people in Northern Ireland.  There is no cure for Pulmonary Fibrosis, and very limited treatments.  The typical life expectancy from diagnosis is 3-5 years which is worse than many cancers.

Originally set up in 2015 by Dr Eoin Murtagh and Pat Gorman, Specialist Respiratory Nurse at Antrim Area Hospital, as a support group for the Northern Trust area, Pulmonary Fibrosis NI became a charity in 2023, and has evolved to support patients and carers from across Northern Ireland.  Led by Mr Tom McMillan, Chairman, along with 6 Trustees comprising of a world-renowned Pulmonary Fibrosis Consultant, a Specialist Nurse, Patients and Carers, and a team of Ambassadors from across the Province, the Charity is making strides in its efforts to improve the quality of life of patients and carers through a range of support services including:

·         Information Booklets issued to patients on diagnosis through their specialist nurses in all 6 Health Trusts across in Northern Ireland

·         Weekly Group Zoom meetings for patients and carers

·         Awareness raising campaigns and talks to local groups and organisations

·         Well-being trips and face to face meetings

·         Website and social media platforms for information sharing

·         A respite caravan, Puffin Lodge, located in Ballycastle on the North Coast and a new respite house located on the 5* Lough Erne Golf Resort in Fermanagh

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  • Pete the Puffing's Brave Adventure
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